This was one of the toughest, high-stakes cases, where the child’s unusual genetic condition required intense care and smooth collaboration.
In India, tuberous sclerosis complex occurs in about one in a hundred thousand people, and PARDS impacts around 6% of all kids needing mechanical ventilation in the Pediatric Intensive Care Unit (PICU).
A three year old boy dealing with tuberous sclerosis and stubborn seizures, as well as severe Paediatric Acute Respiratory Distress Syndrome (PARDS), has found a new chance at life at Rainbow Children’s Hospital on Bannerghatta Road in Bengaluru.
Tough, high stakes situation
Earlier this year, the boy was admitted to the hospital with a fever, rapid breathing, and severe shortness of breath. He was placed on mechanical ventilation due to acute type 1 respiratory failure.
His situation became even more complicated by hard to manage seizures that needed high doses of repeated anti epileptic medications.
He was extubated after a week, he went through major respiratory and neurological setbacks that required re-intubation four times over 6 weeks.
He also dealt with several spontaneous and tension pneumothoraxes – two of which led to peri-cardiac arrest and recurring infections like mycoplasma, enterovirus, and adenovirus.
They thought about using ECMO but decided against it due to his neurological condition.
Instead, they managed him with high frequency oscillatory ventilation, the doctors mentioned.
“This was one of the toughest cases we’ve faced in our PICU”, said Anupam Jaiswal, the PICU Lead Consultant at the hospital.
“The child encountered multiple life-threatening issues at once, and every choice had to be quick, accurate, and tailored”, the doctor added.
Even though the child was discharged a couple of months ago, he had to go back to the hospital three more times for ongoing care and issues with the tracheostomy closure devices.
DISCLAIMER: This article is derived from information available in the public domain.It’s always a good idea to check your doctor before beginning any new routine.
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